E Greetings from Allergy Advocacy

Autumn greetings! Just like getting training in CPR, you never know when you might be called upon to administer epinephrine to save a life. Your Allergy Advocacy Association would like to invite all interested parties to a FREE training seminar concerning administration of epinephrine in an anaphylaxis emergency.  Our first session will be Monday, October 22nd from 7:00 to 8:30 p.m. at St. John Fisher College.  Dr. Shahzad Mustafa will present our new training program, approved by New York State’s Department of Health. Dr. Mustafa joined the Division of Allergy, Immunology and Rheumatology at the Rochester General Medical Group in July 2009.  He is a member of various national organizations, including the American College of Allergy Asthma and Immunology (ACAAI).
 
Due to limited seating, we’re asking for reservations. Please respond at your earliest convenience by contacting us here, sending a note to Janet Goldman or calling us at 585-319-6848. We’d appreciate your spreading the word with teachers, coaches, scout leaders, day care providers or anyone else who works with kids.

Here is a reminder of an important volunteer research opportunity:

If you are pregnant or just had a baby, The Department of Pediatrics, Division of Allergy and Immunology at the University of Rochester is looking for a study participant just like you!  For more information please call 585-275-8991or sign up here.

Have a wonderful autumn season,

Jon Terry
Founder, Allergy Advocacy Association

Save the Date! First Annual Rochester Community Allergy Action Awards Gala!

gala newsletterRochester
Allergy Action Awards

Save the date! We are excited to announce our First Annual Fundraising Gala honoring those in our community whose contribution to research and management of allergies has been invaluable.

It will be held Thursday, November 15 from 6-9 p.m. at ARTISANworks on Blossom Road in Rochester. Read here to find out who the first well-deserved recipients of the awards will be.

We could really use your help to find sponsors for the event and items for a silent auction. Anything large or small would be most appreciated. Please contact Patrick Morris to consider sponsoring or share your ideas. We sincerely thank you and will look forward to seeing you on November 15! 

Dr. John J. Condemi

We are pleased to honor Dr. Condemi with the first John J. Condemi Award for his research in anaphylaxis and working with the advocacy communities in the Rochester area.

Food Allergy Coping Teaching Supporting (FACTS)

The first annual Ruth T. Cornell Award will be given to the Food Allergy Coping  Teaching Supporting network in recognition of its long term community impact in supporting families dealing with allergies.

New Options for Purchasing Auvi-QTM EAI Devices

auvi qGood news for those looking for free epinephrine auto-injectors: Walgreens is partnering with the pharmaceutical company Kaléo to offer AUVI-Q auto-injectors at no cost for commercially insured patients who are eligible for Kaléo's patient support programs. Even those with high deductible plans might be eligible, and if you don’t have insurance, Kaléo may be able to help you through its patient assistance program. The injectors will be delivered right to your home or doctor’s office and have the added benefit of providing audio step-by-step instructions on how to administer them. Check with your doctor and apply today from the link below!

Walgreens and Kaléo Partner to Address Epinephrine Auto-Injector Supply Issues

  • Walgreens becomes the first retail pharmacy to offer access to AUVI-Q auto-injectors at no cost for commercially insured patients who are eligible for Kaléo’s patient support programs.
  • For patients who are unable to fill their current epinephrine prescriptions, Walgreens pharmacists will work with each patient’s healthcare practitioner to see if AUVI-Q is right for them.

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NY State Senator Tedisco: Police Should be Equipped with EAI Devices

Who is usually the first on the scene in any type of emergency? Law enforcement officials. It may come as a surprise to many that police officers are not allowed to administer epinephrine in an emergency, nor do they carry an EpiPen. New York State Senator Jim Tedisco is working to change this situation, since police officers now carry and administer Narcan for drug overdoses. It would be most helpful if you could email your state senator and representative to tell them of your support of Sen. Tedisco’s legislation, S.9153, to permit law enforcement officers to carry and administer EpiPens.

NY State Senator Tedisco: Police Should be Equipped with EAI Devices

By Wendy Liberatore
August 21, 2018
 
tadesco finalNew York State Senator Jim Tedisco (R-Glenville) has called for legislation to close what he calls a “dangerous loophole” by adding law enforcement, who often are first to respond to emergencies, to the list of professionals who can treat people with life-threatening allergic reactions.

Tedisco wants to enable police officers and members of law enforcement to carry epinephrine auto-injector (EAI) devices to treat people in an emergency.

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Latex Allergy Awareness Week Set for October 7-13

Latex Allergy Awareness Week Set for October 7-13

Perhaps you’ve seen signs in schools saying “no latex allowed” which of course would include balloons. Allergies to latex can be very serious, so the Allergy & Asthma Network is designating Oct. 7-13 as Latex Allergy Awareness Week. In addition to providing educational resources, the Network is hosting a webinar on Oct. 11, 2018 at 4 p.m. EST. Called “Latex Allergy Myths & Truths: What the Evidence Reveals,” it will feature board-certified allergist and latex allergy expert Kevin Kelly, MD, of North Carolina Children’s Hospital.


VIENNA, VA (August 31, 2018) – Allergy & Asthma Network announces Latex Allergy Awareness Week is Sunday, Oct. 7 to Saturday, Oct. 13, 2018. The theme this year is “Latex Allergy Myths & Truths: What the Evidence Reveals.”

AllergyAsthmaNetwork Logo 285x168During Latex Allergy Awareness Week, the Network raises awareness about the condition, which affects 1 to 6 percent of the population, and distributes educational resources in print and online. The week is intended to highlight the many issues facing people with latex allergy as well as encourage doctors and patients to stay vigilant in efforts to fully understand the condition and eliminate exposure to latex everywhere.

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