Advocates Lobby for NY Food Allergy Bills

The Allergy Advocacy Association and FARE received some nice publicity from AllergicLiving.com after our recent advocacy event in Albany on May 16. Read all about the various bills in front of the New York State legislature that we are hoping to pass in the very near future. Two proposals are in memory of children who have died as a result of food allergies.

Advocates Lobby for NY Food Allergy Bills

Left to right: Parent Georgina Cornago Cipriano, parent Frank Frangella, Assemblywoman Melissa Miller, parent Cathee Frangella, Jon Terry of the Allergy Advocacy Association, Dr. Kirsi Jarvinen-Seppo of the University of Rochester, Jennifer Jobrack of FARE, Assemblyman Al Taylor, parents Dina and Thomas Silvera & Assemblyman Thomas Abinanti.

From Preschool Allergy Policies to Auto-Injector Access

By: Allergic Living
in Food Allergy News
May 16, 2018

Advocates, including parents who have lost children to anaphylaxis, were in Albany, NY on May 16 to raise support to several food allergy related bills that are proposed for the New York Assembly and Senate in relation to food allergies.

The non-profit Food Allergy Research and Education (FARE) and the New York State group the Allergy Advocacy Association organized the day.

The following is adapted from FARE’s press release:

The advocates joining FARE included children with food allergies, their parents, as well as siblings and grandparents, and adults with food allergies. FARE is working with the Allergy Advocacy Association, a Rochester-based group, on this effort.

The legislative measures for which FARE seeks support include:

  • “Elijah’s Law” (A10031), named in memory of Elijah Silvera, a 3-year-old boy who died last November at a New York City daycare due to exposure to milk, to which he was allergic. The bill would establish an anaphylactic policy for all child day care centers, including a procedure and treatment plan. Elijah’s parents, Thomas and Dina Silvera, were with FARE in Albany.
  • “Gio’s Law” (A08760/S08671), named in memory of Giovanni Cipriano, who passed away in 2013 at the age of 14 due to accidental exposure to peanuts. The bill would establish a requirement for first responders to be trained on how to use epinephrine auto injectors, retrain every two years, and report utilization of anaphylaxis treatment.
  • Restaurant safety legislation A00329 and A00537/S06425, which requires food allergy training and food allergen notification posters in restaurants, respectively.
  • A07219/S02489: This bill would address the situation where a patient is prescribed a brand name epinephrine auto-injector (EAI), a pharmacist may substitute an alternate epinephrine auto-injector containing the same active ingredients, dosage form and strength as the brand name product prescribed.

Allergic Living will be following the progress of these bills.

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