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Welcome to Allergy Advocacy

Welcome to the Allergy Advocacy Association website.  We are here to help better serve any individuals concerned with issues relating to allergies and anaphylaxis.

An Open Letter to NYS Governor Andrew Cuomo

New York Govenor Andrew Cuomo

The hard work of getting legislation passed to allow public venues to stock and administer epinephrine in an emergency was accomplished in June of this year. But it’s not over “till the fat lady sings,” as they say in baseball. Governor Cuomo has yet to sign the bill so our association is sending him the following letter. Please send the governor an e-mail encouraging to Please Sign EATA Now!

 

Read the article here.

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Allergies come in all shapes and sizes ...

Just like allergy sufferers. And they are on the rise. For many people allergies can range from sniffling and sneezing to skin rashes to gastrointestinal issues. A certain percentage, however, have more than these uncomfortable symptoms to deal with. Anaphylaxis, a serious life-threatening reaction, causes approximately 1,500 deaths a year in the United States alone. Clearly, allergies are nothing to sneeze at!

Articles for Advocacy

New institute tackles the mysteries of food allergies

Peanuts in Shells
Photo by Patrick Sison/Associated Press

Never underestimate the power and determination of mothers with children who have life-threatening food allergies. Lesley Solomon of Boston decided to take matters into her own hands after her son dangerously failed a milk allergy test in his doctor’s office. She was dismayed to find out there weren’t better ways to diagnose food allergies and how relatively little was being spent on research into a life-threatening affliction. So she galvanized the help of others in the same situation, and so far they have raised $10 million to fund the Food Allergy Science Initiative at the Broad Institute in Cambridge, Mass.

Read the article here.

Letter To An Allergic Teenager…… From One Who’s Been There!

Allie Bahn

Adults can constantly remind teenagers with allergies to carry their epi-pens, but hopefully when they hear it from someone who has “walked the walk” they will listen. Here is a great letter to teenagers written by Allie Bahn who survived her teenage years by being responsible when it came to managing her allergies, even with a little rebellion mixed in.

By Allie Bahn
June 29th, 2016

Dear Allergic Teenager,

I have decided you need to hear my thoughts as an “already been there” allergic teen. At your age, I struggled to listen to older, wiser advice. But since I am not your parent, or even anyone’s parent yet, I am hoping you will be open to my words and the truth they speak – I’ve walked your walk and get it. So give me a chance before you stop reading because you think you know better! Hah, see? I was once you.

Read the article here.

As EpiPen Prices Skyrocket, Consumers and EMTs Resort to Syringes for Severe Allergies

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EpiPen™ & EpiPenJr™
Photo by M/via Flickr

The price of EpiPen kits has skyrocketed in recent years, but does that mean it’s safe to substitute manual syringes? Many doctors say no, that it is far easier to contaminate and not administer the correct dosage. But many towns are supplying their emergency medical technicians with syringes in order to save money. Other alternatives such as using a generic brand or funding a healthcare reimbursement account if your employer offers one are also available.

The Prices of Epi-pen Auto-Injectors Have More Than Quintupled Since 2004.

By Ike Swetlitz, STAT
July 6th, 2016

Millions of people with severe allergies carry EpiPens to reverse life-threatening allergic reactions. But as the prices of these auto-injectors have soared, more than quintupling since 2004, many emergency medical responders — and some regular families — are turning to manual syringes as a cheaper alternative.

Read the article here.

Upcoming Events

July 30, 2016 - JORDAN HEALTH FRONT PORCH FESTIVAL AND HEALTH FAIR

Jordan Health Front Porch Festival and Health Fair
Baden Park
Rochester, NY 14605
Saturday, July 30, 10am - 2pm

July 31, 2016 - FOOD ALLERGY AWARENESS DAY

Rochester Red Wings vs. Lehigh Valley Iron Pigs
Frontier Field
One Morrie Silver Way,
Rochester, NY 14608
Sunday, July 31 @ 1:35pm

August 6, 2016 - SENATOR MIKE RANZENHOFER FAMILY HEALTH FAIR

NYS Senator Mike Ranzenhofer family health fair
Amherst Senior Center
370 John James Audubon Parkway
Amherst, NY 14228
Saturday, August 6, 9am - 12 noon

August 6, 2016 - FARE WALK FOR FOOD ALLERGY

FARE Walk for Food Allergy
LaSalle Park 1 Porter Avenue
Buffalo, NY 14202
Saturday, August 6, 9am - 12 noon

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The information provided on this site is in no way intended to be a substitute for medical advice,
diagnosis, or treatment with a licensed physician.
The Allergy Advocacy Association is a 501(c)(3) non-profit, tax-exempt organization.
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